FDA Approved Drugs and User Comments: TRILEPTAL

User Comments:

“After expensive, unnecessary dental work and a little research, I diagnosed myself with Trigeminal neuralgia (TN). Took a little convincing to make a believer out of my doc, but finally got a consult with a neurologist. He was doubtful until I described my symptoms, which were typical TN symptoms. Trileptal is my 4th major TN drug to try (new neurologist) and at first it was a godsend. I’ve been on it a little over a year now, and am on neurontin an baclofen as well for other pain issues. It has in the last week just quit working. I still work as an RN in ICU and am scared to take too much more because I need my mind to function at top capacity. I already feel a little slow thinking from all the meds I’m on, but can’t function without them.”

DogMomRN (taken for 1 to 2 years) December 22, 2017

For Seizures “I started taking Trileptal when Tegretol stopped working for me. I love this medication. I developed epilepsy following a head injury (diving accident) when I was 8 years old. I’ve had seizures (daytime absence, daytime partial, nocturnal grand mal) since then. Tegretol worked for me for years, then stopped working. Trileptal has been my only seizure medication for the past 11 years and I couldn’t be happier. I have to add salt to my diet, and I get very flush whenever I exert myself, but being completely seizure free is worth these small inconveniences.”

girlwiththebadbrain November 21, 2017

For Seizures “My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. She was jerking very violently, and her eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she’s had seizures. She had an MRI ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, facebook and website of people that was cured from seizure”

alfred marta June 14, 2017

For Seizures “Although this medication did decrease my daughters absence seizures, if she took this at any time 30 min before or after eating, she had a severe reaction. Her throat would burn inside and out, her face would flush, she would get dizzy and unable to focus. This would last about 5-10 min. and then she would get so tired, she would instantly fall asleep and sleep for hours. She was at a pretty high dose during this time 1050mg 2x daily. We finally stopped this medication, because of the stress of having to watch so closely when she ate and when she could take this medication.”

Anonymous (taken for 6 months to 1 year) October 4, 2016

For Seizures “I have temporal lobe seizures. I have taken Trileptal for many years and it has helped controlled the seizures. However; I have been having issues with low sodium. The doctors blame it on the Trileptal. So to fix the problem, they suggest eating high sodium foods, fluid restriction, and no water. Water dilutes the sodium. They also suggested that I add about a teaspoon of salt to my meals. So what I do for thirst is drink Gatorade but only a few sips. But you got to becareful and not to drink more than a liter of fluid in a day as this is what is recommended by the doctor. My neurologist recommended that I drink gatorade. So most of the time I drink Gatorade when I eat my meals.”

Marge S July 17, 2016

For Seizures “I have been on Trileptal for about a month now. I’m taking 300 mg twice a day. I had an abnormal EEG and diagnosed with right-sided temporal lobe epilepsy. I started having pain 5 yrs ago -intense, daily pain in my right eye and eventually extended further up on the right side of my head (which is related to the epilepsy). I was also suffering from repeated inappropriate thoughts (of sexual nature) very disturbing and disrupted my life. I have since found out that OCD behavior very frequently accompanies temporal lobe epilepsy. Trileptal has stopped the partial sz and inappropriate thoughts. Indocin 25 mg is controlling the pain. Hope this helps others.”

doglover68 October 22, 2015

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